US COPD Coalition

Want to know more about Patient Registries for research? Join free webinar sponsored by AHRQ’s Effective Health Care Program


The U.S. Department of Health & Human Services Agency for Healthcare Research and Quality (AHRQ) invites you to join them in a free webinar on April 10, 2019 from noon to 1 p.m. ET, to learn about the successes and status of the AHRQ-funded Registry of Patient Registries (RoPR) and Outcomes Measure Repository (OMR).

The RoPR is a searchable, publicly available database that allows patient registry sponsors to share information about their registries to promote collaboration, reduce redundancy and improve transparency in registry-based research.

The OMR is a centralized, web-based repository of information about the patient outcomes that are captured in patient registries. It collects and displays this information in a standardized way that supports searching for and comparing different outcome measure concepts and definitions. In particular, the OMR is designed to share harmonized measures developed as part of the Outcome Measures Framework (OMF) harmonization project.

The RoPR will be discontinued on Monday, April 15th. Join the April 10th webinar, which will highlight RoPR successes, review the OMF harmonized measures and the role of the OMR, and discuss the future of both systems.

For questions, please email